A "thank you" from Jenni
received via our Facebook page re the
IBD & Stoma Kids Get Together
Held at the Royal Children's
5th April 2014
A very belated thank
you to Young Ostomates United for
supporting the get together for IBD &
Stoma kids at the Royal Children's
Hospital a few weeks ago.
was great to have the opportunity to sit
down and have conversations with both
current and retired (thanks Lillian)
Stomal nurses and to have the opportunity
for my son Jack to talk to some one else
with a stoma (thanks Helen) this was great
opportunity and although numbers were low
as a family we got a lot out of it and
then had a follow up a few days later with
the RCH stoma nurse - best info session we
have ever had.
were given lots of other things to try to
get those rotten flanges to stay on a bit
longer. Unfortunately as great as it all
sounded and we came home with some samples
and tricks to try they have not worked for
us. Think that 10 year old active boys are
just a different shape to bigger people
who are less active, so we are still
changing the flange daily, at a stretch we
occasionally get an extra day.
think the opportunity to just have that
round table conversation is great,
although we get to ask questions etc here,
to see where the conversation goes and the
extra things you can pick up was
invaluable. Doctor wise things weren't as
positive for us and we are heading back to
Melbourne in June for a big talk with
doctors as to where we progress too???
Maybe on line asking heaps of questions
after that little chat!!
again to YOU for your support.